Lexi Mancini

By Allyson Mancini
My 14 year old daughter, Lexi, has .
She will: live her life like every other 14 year old; dances competitively

Lexi was diagnosed with Turner Syndrome when she was 1 year old, and spent most of her early years in/out of hospitals with procedures too numerous to count all through elementary school. She still pursued her love of and pushed through the constant ‘not feeling good’ and being . At age 11 she began missing school almost every 5 days with infections, etc., and was finally diagnosed with CVID. Although scary, we finally had answers to the years of sickness.

Lexi was just nominated the Dancer of the Month at her dance studio for February! She has been dancing for a total of 6 years. Lexi was chosen because of her outstanding commitment to herself, her team and her studio. Lexi spends nearly everyday at the studio, always walking in with a smile and positive attitude that is absolutely infectious. Lexi one day aspires to open her own dance studio.

That is Lexi. She works hard, and strives to be her best. We have moments of ‘pity-party’ (and are allowed a few minutes of tears) and then we buck up and move on! She receives IVIG every 3 weeks and is usually quite tired the week before. She suffers from joint pain pretty frequently, but doesn’t let it stop her. God has gifted with her being very strong-willed and stubborn, which is a plus when dealing with a chronic condition. People that meet her are surprised to learn she has this medical condition. I am proud of her and hope she can be an example to other kids and adults that deal with immune deficiencies. She is going to great things in her life regardless of her situation with CVID!



About The Author

David Brumley

David Brumley is an immunodeficient triathlete diagnosed with CVID, Common Variable Immune Deficiency, in 2008. Through the sport of triathlon he will inspire, equip and encourage you to find your better in life. Professionally he works independently in the field of marketing and design. David is married and has one beautiful daughter along with a dog, cat and two guinea pigs.

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