Julie Cravens Jolley

I was diagnosed with in April of 2013. I was thankful we finally figured out what was wrong with me, but had no idea what it would mean for the rest of my life. I have run 7 marathons and would always end up with bronchitis/pneumonia and would have to stop for a few weeks. This made the so difficult! I needed a change, and so I decided on .

Short story about me…in 2005 I weighed 275. Yep, you read that right. I decided it was to get healthy. So, I started weight watchers and lost about 75 pounds that year. The next year, I decided I was going to run a marathon. So I lost 25 more pounds and ran White Rock. I was hooked. In about 2009 I started to get a lot. But even though I raised concern, my doctor didn’t respond. October 2011, my brother came home on leave from Afghanistan to do the Tough Mudder with me. On his way back to base I lost him when his convoy was hit by a suicide bomber. That was my real trigger…I stayed and couldn’t recover. Thinking it was grief and depression, I went on Zoloft and to therapy for almost 2 years. I ended up in the hospital in February 2013. An ID doctor identified CVID after ordering all sorts of blood work. The emotional stress of my brother’s death had kicked the CVID to a new level, leaving me constantly and tired.

I’ve been on IVIG since June and my life has miraculously changed!!!!! I’ve been able to get back to CrossFitting am a much better wife. I AM READY TO GET MY LIFE BACK!!!!

I still have days where I literally can hardly get through work and just get home to bed. (Usually week 3 after my infusion.) And those days, I have to rest. But when I feel good, or even marginal, I go to CrossFit. Exercise is my drug so to speak. Not just the physical part of it but emotional as well. And anyone can do it…you literally just have to take that first step. Whether it’s a walking program or a triathalon, then that is fabulous for that individual!

It’s amazing to see someone else with CVID being an athlete! Because I know how hard the struggle is each and every day!

For me, TriForBetter means that I will no longer let my illness consume me. I am fully committed to taking my body back. In the last couple of years, I have left a lot of i’s undotted and t’s uncrossed. It’s time to take control and make the noose that CVID has had around me into a leash and tell it that I am going to take control, even when setbacks occur!

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About The Author

David Brumley

David Brumley is an immunodeficient triathlete diagnosed with CVID, Common Variable Immune Deficiency, in 2008. Through the sport of triathlon he will inspire, equip and encourage you to find your better in life. Professionally he works independently in the field of marketing and design. David is married and has one beautiful daughter along with a dog, cat and two guinea pigs.

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TriForBetter: Racing to Raise Awareness for Primary Immunodeficiency On Sunday, April 12th four individuals with primary immunodeficiency and three supporting friends participated in the Playtri King Tut Triathlon to raise awareness for primary immunodeficiency. The two relay teams and one individual, the founder of TriForBetter, David Brumley, raced to raise awareness for primary immunodeficiency (PI), an

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