Jessica King

Coincidentally, I stumbled across your webpage on Facebook last night right after I completed my first workout in over one year. I have always been an avid athlete and enjoyed physical activities, so this past year has been crippling for me in many ways. I suffered 7 years through my teenage & early adult years with an autoimmune disorder, which required heavy doses of steroids & chemotherapy. I had a few years of relief when it entered into remission but just a few years ago, I found myself constantly getting with infections.

In February 2013 I finally had surgery to remove my tonsils and then April 2013 was sinus surgery – all in hopes of alleviating my infections! Unfortunately, I never recovered from the surgeries and my doctor was stumped with what he thought was a nasty post-op infection. It finally took an infectious disease doctor & immunologist to diagnose me with this past August 2013. I started monthly IVIG treatments in October 2013 but after just one round, I had to increase the frequency to every three weeks. For the last few months I have thrown myself one wicked pity party and I found myself growing more and more depressed… missing the life I had for those few years of health. Everyday I mourned another day lost to sickness and grew weary thinking of “how long will it be until I can run again? Play softball? Kickball? Horseback ride? How long until I feel up to going out and socializing with friends? How long until no longer controls my every day?”

I had an IVIG treatment this past Thursday and slept the entire weekend, ‘resting up’ for better days. Something inside of me snapped late on Sunday night. Out of the blue I said to myself, “Something must change. Make the change. Just do it. Stop waiting to get better. Make yourself better however you can.” After working Monday, I came home and changed clothes and headed straight to the gym. One hour later, I jogged my first 2 miles in over a year and completed some basic core strengthening exercises. I felt emotionally and mentally ecstatic and incredible. And surprisingly, not too sore today. I just got back from my second workout. My goal? To spend two weeks horseback riding through an European country as I did just three years ago.

I will be better. I have stopped waiting to be better. I am so thankful to have found your webpage when I did – it will be my inspiration and motivation!

       

About The Author

David Brumley

David Brumley is an immunodeficient triathlete diagnosed with CVID, Common Variable Immune Deficiency, in 2008. Through the sport of triathlon he will inspire, equip and encourage you to find your better in life. Professionally he works independently in the field of marketing and design. David is married and has one beautiful daughter along with a dog, cat and two guinea pigs.

Comments

  • By Jamie B - on Reply

    Thanks for sharing your story Jessica! You and I have some things in common, which is typical of CVID patients. I have had 3 sinus surgeries in the last 8 years, and I had my tonsils and adenoids taken out when I was a kid (not to mention the countless tubes I had in my ears as a kid and an adult). I was finally diagnosed only about 10 months ago. I started on SCIG about 8 months ago, and starting this week I am going to switch to IV. Unfortunately, in spite of being on IG and prophylactic antibiotics, I have still had persistent infections. It was a pretty rough winter for a lot of us. But you are on the right track! I am a cyclist, and I know for a fact that my active lifestyle makes me better and gives me a better quality of life. Sometimes my body doesn’t want to cooperate, but I find that if I just get out and ride, I feel better most of the time.

    We have a facebook group that you should join. It is a community of people like us with PI who seek to achieve and maintain an active lifestyle. Triforbetter was founded for the purpose of helping people like you and me to get and stay physically active. Please, join our group and post your story there too! Let us know if there is anything we can do for you!

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TriForBetter: Racing to Raise Awareness for Primary Immunodeficiency On Sunday, April 12th four individuals with primary immunodeficiency and three supporting friends participated in the Playtri King Tut Triathlon to raise awareness for primary immunodeficiency. The two relay teams and one individual, the founder of TriForBetter, David Brumley, raced to raise awareness for primary immunodeficiency (PI), an

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